January
29, 2013
So here we are- a bit after 4 years of diagnosis
and we are back to sever headaches with blurriness vision...
At this point- Marni doesn't type very well. She is
completely left-handed and her right arm has limited function. Don't get
me wrong - she still gets fired up and yells like nobodies business when she isn’t
happy!
This weekend was a heavy weekend; Marni woke with a
3-day recurring headache. The headaches were so bad that Sunday morning she
asked to go to the emergency- absolutely not the norm for her....
What makes life so aware and real is that Finn said
to me in Sunday morning when Marni was in pain..."dad I feel so bad" I
stopped in the middle of chaos and asked Finn, "bud, why do you feel so
bad...?" his response was simple and honest- "because I have
never seen mom cry."
As I sit at our desk and compete the City of Hope (3 opinion paper work)
it makes me think that I need to give myself permission to cry more in front of
my children. In front of my friends. I realize its not weakness...it really
defines how strong you/ we are as people...pl
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