Monday April 27, we go for a MRI to see what the Gamma Knife, Radiation, Chemotherapy, special Water, and above all the positive thoughts have done to this tumor.
In the last 3 weeks my eyes sight has gotten worse, as the days go by I have wanted to sleep more and more but continue to force myself to get up and get going…
With 2 awesome kids, they need me to get up and make them oatmeal with bananas and nuts for Finn. Some rice ceral with soe fake brest milk --------all served up with a little love and a smile…
I continue to try and wean myself off the steroids but my head pounds as I do so…and as I continue to stay on them my weight increases.
Frustration.
I know it may sound vain, talking about weight gain with a brain tumor. But in my world I have never been like this, all I am looking for is some kind of normalcy within my own…
I want my body back,
I want my mood back,
I want my communication back,
I want to have my long hair back,
I want to have my energy back,
I don't want this..
I want not to be scared of Monday, let alone everyday.
I am frustrated with the where I am... but realize it may just be the beginning….
These past weeks have been tough as I have begun to see random abstract visions again…similar to before I was diagnosed. Talk about freaking out…
I spoke to Rebecca in Dr. Rudnick’s office and was advised to increase the anti-seizure meds from 500 twice a day to 750 twice a day.
With troubling eyesight, headaches and possible small seizures, I have huge concerns what the results from Mondays MRI will show…
I love you so! I think of you on a daily basis, I have shared your story with so many, even my 5th graders, all who have asked and kept up through you blog, or me in regards to your health. We so much want to help in any way we can. What can we do? We plan on being in CA in May, can we see you and Paul? Let us know how tomorrow goes! You are always in our thoughts and our prayers are always strong! Smiles your way!
ReplyDeleteBeautiful Marnie, my heart is filled with love for you and hope for positive answers today. we will continue to follow your journey.You are always in my thoughts. Mprayers go out to you to keep faith and continue on with your courageous batttle. Marnie, since I have known you since your youth you have always had that extra fight in you. Please keep that going. We are all sending you positive thoughts. I cherish the time I spent with you in Dec. I would love to come and be of some help to you and the boys. My love to you Paul and the boys. My heart is with you always. Cheryl Merrifield
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